Focus on knowledge creation
Without ideas there is nothing to manageTHE IMPORTANCE OF PATIENT INVOLVEMENT AND PATIENT REPORTED OUTCOMES IN DATA-DRIVEN BLOOD CANCER RESEARCH
Source: HARMONY Alliance website Despite the many advances in medicine, healthcare’s Achilles’ heel remains a one-size-fits-all model that often overlooks the patient’s perspective. Data collected directly from patients in real-world settings and analyzed by AI has...
HARMONY ALLIANCE HTA TASKFORCE EXAMINES CLINICAL VALUE FRAMEWORKS FOR HEMATOLOGIC MALIGNANCIES
Source: HARMONY Alliance website Value frameworks that are currently used to evaluate the clinical value of novel therapies for hematologic malignancies make insufficient use of routine care data (also referred to as 'real-world data') and patient-reported outcomes....
EHDEN ANNOUNCES THE RELEASE OF THE EHDEN PORTAL
Last week EHDEN announced the first release of the EHDEN Portal, with free access to the research community. This launch took place during the OHDSI Europe Symposium 2022 held on June 24 in Rotterdam, the Netherlands. The Portal includes a Data Partner...
PRESS RELEASE: HARMONY presents new insights in prognosis of AML patients
Source: HARMONY Alliance website The HARMONY Alliance will present new results in Acute Myeloid Leukemia (AML) at the annual congress of the European Hematology Association (EHA2022). HARMONY Partner, Dr Alberto Hernández-Sánchez of Hospital Universitario de...
HARMONY project achieves 100,000 Patient data sets showing the value of data sharing to accelerate blood cancer research.
With almost 100,000 patient data sets identified and 63,000 already transferred to the HARMONY Big Data Platform, the HARMONY Alliance is fully equipped to facilitate state-of-the-art research into blood cancers. Big Data Platform The HARMONY Big Data Platform is a...
Building on success: EHDEN completes its first three years!
When the EU’s Innovative Medicines Initiative launched the five-year EHDEN project in November 2018, it did so with an overarching goal in mind: to significantly improve patient treatment and care by unlocking the under-utilised and transformational potential of real...